Every year Cub Scout Pack 227 in Huntington Beach selects a charity to focus its outside fundraising efforts. This year that charity was “Joshua’s Journey of Hope” which is dedicated to finding a cure for the disease cystinosis. Cystinosis is an “orphan” disease with about 500 people, mostly children, stricken in the United States and approximately 2,000 worldwide. It is a metabolic disease in which the amino acid cystine, gets into the cells but has no transporter out. Because of the defect in transportation, the cell crystallizes causing early cell death. Cystinosis slowly destroys the organs in the body including the kidneys, liver, eyes, muscles and the brain. With such a rare disease affecting such a small population, research money is scarce to nonexistent. And yet research on complicated diseases like cystinosis often lead to advancements in other rare diseases.
“Joshua’s Journey of Hope” is named after Joshua, a 6th grader and former member of Pack 227. Over the past year the pack raised money for this charity in a number of ways including hosting a lemonade stand, a “Get Air” fundraiser and simply having Scouts collect and donate loose change from home. When all was said and done they had collected $2,000 which was presented in the form of a check to Joshua and his father at the pack’s annual religious retreat on November 5th. Joshua is currently a member of Boy Scout Troop 227 where is a Tenderfoot. He is a loving, spirited and joy-filled boy. He is truly an inspiration to all who meet him.
Through its annual charity like Joshua’s Journey of Hope, Pack 227 tries to instill some of the principles of the Scout Law including “A Scout is Helpful” and “A Scout is Kind”. For more information on “Joshua’s Journey of Hope” and how you can help please go to www.joshuasjourney.org